Benefit and Update On Cole Haakana
After writing aboutCole Haakana
, a young boy being treated for Central Nervous System Tuberculosis and his problem securing a diagnosis, we were flooded withe-mails
from people wanting to help.
For three years the Halvorson-Haakana family say Cole has been victimized by risk management and physician's fear of litigation. They say they still can't secure a neurologist for their son, despite the fact he is being treated for a disease in his brain.
This Sunday from 1-5 p.m., the Narrows Saloon in Navarre, just west of Minneapolis, is hosting a fundraising event for the family. The program will feature a silent auction, door prizes, raffle drawings, and live music performed by Shalo Lee and the Guitar Daddies.
A Denver Broncos Super Bowl autographed football, Minnesota Twins tickets, hunting packages, various restaurant gift certificates are among the items to be auctioned.
Cole, 13, is continuing with the TB medication and feels better. He is currently attending summer school to catch up for the school he missed during the worse parts of his illness.
Since the publication of our feature story, a doctor in St. Cloud reached out to the family and tested Cole for various types of Lyme Disease. One of the the tests came back abnormal, but the doctor is still trying to figure out if the abnormality is related to Lyme or something else. The positive finding is not unique to Lyme, says his mother Carrie Halvorson.
At times Cole is still sick. He has secondary issues including headaches and a slowed heart rate. His doctors have referred him to a cardiologist, she adds.
The 13-year-old is currently being evaluated by the National Institutes of Health as a likely candidate for its rare disease program. The family also continues to look for help overseas.
Donations and proceeds from the silent auction will go towards The Cole Haakana Benefit Fund.
Admission is free and the event is open to all. For more information contact Desiree Haakana at: [email protected]
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