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Mystery illness fells young man

But to get her son's mysterious malady diagnosed, a mother must battle some of the area's top hospitals

School had just started for the year and Cole Haakana

could hardly sit still in his fifth-grade classroom. Today, he was going to a friend's house and they were going to walk into town and get ice cream.

Raoul Benavides
In a matter of months, Carrie Halvorson watched her son Cole regress to a big kid with the mentality of a four-year-old
Raoul Benavides
In a matter of months, Carrie Halvorson watched her son Cole regress to a big kid with the mentality of a four-year-old

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Also see our expanded web content, including the PHOTO SLIDESHOW and an extensive REPORTER'S NOTEBOOK about disciplinary actions against doctors. You can also visit Carrie Halvorson's personal Web site.

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But when school let out later that day and the two boys walked the winding neighborhood roads that follow Lake Minnetonka's shoreline, Cole needed to stop and rest. The 10-year-old boy—who spent nearly all his free time riding his BMX bike, fishing, and playing baseball—suddenly felt weak.

He was wracked by a cough so scary that his friend's mother called Cole's mom.

Carrie Halvorson wasn't worried at first. It was September 2005, the kids were back in school, and Cole had probably just picked up some type of bug. They'd wait it out over the weekend.

Fall was the time of year that Halvorson, then a vice president at Sunrise International Leasing, could relax and watch the neighborhood prepare itself for winter. It had been a hectic summer. The family had just finished remodeling their Shorewood home overlooking the lake and celebrated with a trip to Yellowstone National Park. It was time to go back to work.

But when Monday came around and the cough had turned into a bark, Cole's father brought him to the doctor. The M.D. diagnosed him with "croup-like" symptoms and prescribed Prednisone, a steroid-based asthma medication.

The next day, Cole awoke screaming, thinking his throat was closing. Soon after, his parents took him back to the ER. Cole was admitted on the spot. For the next five days, he was treated at the hospital for breathing difficulties and pneumonia. He left the hospital with instructions to continue antibiotics and two steroid-based asthma treatments, more Prednisone and a prescription for Advair.

Cole returned to school, but didn't seem like himself. The lifelong B-student was doing things that just didn't match the responsible, hard-working kid his parents say they raised. Cole and some friends left an obscene message on their gym teacher's answering machine, and he got detention after stuffing a lunchroom baked potato down the toilet.

Cole had gained some 20 pounds since starting the steroids and was getting teased; his parents chalked his behavior change up to the stress of starting middle school. It wasn't until Cole starting getting violent that they knew it was time to take him back to the doctor.

Just days after his 11th birthday, Cole was prescribed antidepressants. It was December, Christmas was right around the corner, and Halvorson was sick with anguish. Cole told his doctor he wanted to die. He said he thought about hanging himself and stabbing himself with scissors. The M.D. referred Cole to a psychiatrist.

"He was 11," Halvorson says, swallowing back tears. "We didn't even know he knew what suicide was."

The depression had taken a physical toll on Cole. Besides the weight gain, the life had drained from his normally joyful, energetic face. Cole's smile was gone and his lips seemed stuck in a strange, twisted frown.

One day, Cole stood in front of his mother in their home's spacious kitchen and stared at her with an intense gaze unlike anything she had ever seen before. "His face didn't look like himself at all," Halvorson recalls. "In his eyes, he just looked like he was gone. It was scary."

Without saying anything, Cole abruptly turned around and left to go outside. It was January, you could see your breath in the cold winter air, and Cole didn't even stop to put on his coat.

"I knew I had to follow him to see what was going on," Halvorson remembers.

No time to grab a jacket of her own, the mother slipped on her shoes and ran after her son. She found him in the garage standing on a white bucket propped on the cold cement floor. The boy had strung a rope over the rafters and was adjusting a noose around his neck.

"I screamed, 'Oh my God! Cole! What are you doing?' And I ran over there and grabbed him. And hugged him. Something was really wrong."

Collapsing into his mother's arms, Cole sobbed as she gently removed the rope from his neck. "He said he didn't know what he was doing, that he didn't know what was going on," Halvorson recalls.

Later that night Cole told his parents that he was hearing voices. Inside his head, God and the devil were fighting for his attention, telling him to do things. The devil had told him to hang himself.

In a matter of months, his parents and doctors watched as Cole regressed from a healthy 11-year-old into a big kid with the mentality of a four-year-old. Cole forgot how to ride his bike. He mumbled nonsense, and broke into psychotic rages, screaming with terror. His parents bought Play-Doh and blocks that kept him captivated for the better part of a day. Sometimes Cole spun around in circles for hours.

When a neurology report came back in February 2006 with no significant medical findings, doctors began to suspect that Cole suffered from a rare form of steroid-induced psychosis. It was a stretch, but what else could explain Cole's befuddling behavior? By April, when it became evident Cole wasn't responding to anti-psychotic medication and was becoming physically sick with frequent nosebleeds, headaches, and night sweats, his psychiatrist gave up. The next month, Cole was referred to the Mayo Clinic with urgent need of admission.

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  • Carifeldman 11/04/2011 8:30:00 PM

    These moron doctors did not know that the "cause" was Blastocystis; this is also what is often misdiagnosed with Blastocystis; Cole had classic symptoms of Blastocystis; I have Blastocystis and have the same sytmptoms like Cole; memory loss, short attention span, stomach problems, pain in the gut, extreme fatigue, asthma, breathing problems, headaches, etc; Halversons were right, their problem was parasites; the kid did not know of course how to communicate his illness; in the USA, stupid doctors do not know anything about Blastocystis; and they prescribe Metronidazole/Flagyl; or Alinia; these do not work; I took them all; if you get Blastocystis, you are ruined and your family as well; my wife left me, and am about to lost my job; my house; as I cannot keep my job; Blastocystis is pathogenic, and a horrible parasitic disease; it is one of the hardest to kill since the US does not invest in research about how to kill this parasite; the cyst forms of this parasites are the hardest to kill; Within two days of getting it, I could not even walk; or concentrate; my stool turned horrible green color, and not digesting; started to develop hives whenever I ate starch, with foggy head; and constantly sleepy. Severe joint pain; and the world becomes so gloomy, and you become suicidal; Blasto modulates your immune responses, and wreaks havoc on your digestive system; need I say more? Be aware; this disease is worse than cancer or even HIV; at least if you have them, doctors will take you seriously; if you have Blasto; it is untreatable now, because of US doctors arrogance and ignorance of it; and they will be ruined, and disabled. Blasto is misdiagnosed as Gulf war syndrome.

  • Lauren 10/01/2011 4:14:00 AM

    Re: Carol Greenwood's comment: Amen!

  • Carol Greenwood 06/11/2008 7:03:00 AM

    This is reflective of a lot of medical history--autism and other conditions with behavioral manifestations, as well as conditions such as fibromyalgia, gulf war syndrome, and chemical sensitivity that depend primarily on patient self-report and don't show obvious results on cheap easy medical tests being examples. The medical community shows itself to be pusilanimous and simplistic in blaming the victim if they don't get quick easy test results. It's the patient's fault for being a "bad child" and not minding the paternalistic doctor, rather than some unknown physical cause the doctor can't discover, thus showing him up to be less than all-knowing and all-powerful. Many conditions once thought to be the fault of evil spirits, then bacteria, then "bad" mothers are now known to have some physical basis that disregulates the immune system as a consequence of chemical toxins, microorganisms, or faulty nutrition. The greatest failure of the medical community is its close-mindedness and lack of compassion and it's unwillingness to help the afflicted person in an ongoing search for causes and remedies.

 

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